Thursday, March 31, 2011

Please Pray for Daddy

Daddy and Two of His Great-Grands
Labor Day, 2010

Good evening Sisters.  I am posting to request prayer for Daddy.  He has had a really bad day.  I contacted our Hospice nurse and explained his symptoms to her; adding that he does not have a temp, not even a low grade one.  She advised this is most likely just another move closer to his home going. 

We have opened his comfort kit (a box of medications given to hospice patients and only used as they become sicker) and have started to give him Compazine by mouth for recurrent nausea and Morphine drops for relaxation of the chest muscles in order to try to help him breath more easily.  It has been minimally effective. 

I fear the really hard part has begun.  He is terribly uncomfortable and has a very difficult time breathing.  He keeps insisting he isn't in pain, yet he groans and moans regularly.  I don't mind telling you this is very hard for me.  The memories are all too fresh and I see Terry every time I look at Daddy. 

I have called my sisters and they have offered to come and set up with me tonight, but I don't think we've reached that stage yet.  I pray this is just a temporary set back and that he will rally and be better, but I also do not want to extend his suffering. 

I'm not in a good place emotionally and don't really even know what to ask you to pray for; just that God's will be done and that Daddy can be spared suffering if at all possible.  We only want what God wants for Daddy and for ourselves.


Confess your sins to each other and pray for each other
so that you may be healed.
The earnest prayer of a righteous person
has great power and produces wonderful results.

James 5: 16  (NLT)


O God, listen to my cry!
Hear my prayer!
From the ends of the earth,
I cry to you for help
when my heart is overwhelmed.
Lead me to the towering rock of safety,
for you are my safe refuge,
a fortress where my enemies cannot reach me.
Let me live forever in your sanctuary,
safe beneath the shelter of your wings!

Psalm 61: 1-4  (NLT)


Wednesday, March 30, 2011

KIERSTEN UPDATE FROM HER MOMMA

After going 1 year seizure-free, Kiersten started having seizures again last week. She had a total of 50 seizures this time around before they finally got them stopped with a very heavy dosage of Phenobarbital. She is now very drugged up and the doctors have started to back off of the medication as she has gone ...72 hours with no seizures.

During various testing, the doctors noticed that her liver enzymes were elevated. They are now worried she might have Alpers' Disease. Blood was drawn today to test for it. We will get the results back in 21 days. This means that we have 21 days to pray this thing away. We need for everyone to pray that Kiersten does not get diagnosed with this dreaded disease.

Thank you!!

I am blessed!




Wow! I was so surprised when I opened a box that was delivered to me today. When I removed the packing to retrieve what I thought was cardstock that I had ordered. There it was, a wonderful little Bible. I recognized it immediately and knew I was receiving a blessing. I will admit that I was shocked as I didn’t expect to be in on this wonderful event.

So here it is safe and sound in my home for the next week. My thoughts first ponder,  what will this precious little Bible bring me? A fresh word, an encouraging word,  a word of correction, an uplifting word in a time of need? I am so excited to see what this week holds!

I know you probably think I am crazy for expecting something different from this little Bible that contains the same wonderful words as my personal bibles do, but call me crazy, I do!

I also received a wonderful gift from Diane.  It is a inspirational desk calendar. Each day I will be reminded of her and this wonderful journey with you Scarf Sisters as I flip the page to reveal a new days inspirational thought or Scripture.

Thank you for including me in this blessed journey! Being involved in such a tangible way with each of you has brought a joy to me that I pray will continue in our lives and journey together until meet at our home in heaven!

Until tomorrow...

May the grace of our Lord Jesus Christ be with you all,
Sherri
YayaYarns

Thank You, Trish!




There's more, much more to Christmas
Than candlelight and cheer;
It's the spirit of sweet friendship
That brightens all year.
It's thoughtfulness and kindness,
It's hope reborn
For peace, for understanding,
And for goodwill to men!

- Unknown




Another Christmas tree ornament from Trish came in the mail today... and it's beautiful!

My Christmas tree this year will truly be special, what with two new lovely ornaments to put on it!

Trish, thank you for your thoughtfulness!




Tuesday, March 29, 2011

Greetings Sisters

Just poking my head up .. trying to find any sign of spring.  Our Bible is in transit and should arrive in one of your mailboxes any day now for a new adventure.  After hibernating all winter, I'm SO looking forward to spring.  Our area is experiencing the third rainiest March on record .. which means it's been gloomy .. but thankfully not too snowy. 

I updated Connie N's website as she just recently moved to Japan.  Please give her a big welcome home if you have a moment. 

Have a blessed day.

Saturday, March 26, 2011

Friends........

"Friends are friends forever
if the Lords the Lord of them."
---Michael W. Smith

Just thought I would take the opportunity 'between times' to show you all what lovely gifts Sandy sent to me with the Bible.  I'm betwixt and between about whether to make an ornament out of the shelf sitter and enjoy it on my Christmas tree each year or whether to sit it in my kitchen window and enjoy it every day.  I'm thinkin the kitchen window is winnin out!  It just makes me smile every time I look at it!  Thanks Sandy!

I also wanted to share a couple of the quotes from the booklet.  I have enjoyed so much reading it and turn to it almost every day for encouragement and to remember each of you.


"Your friend is the person who knows all about you
and still likes you."

---Elbert Hubbard


"Friendship is born at that moment
when one person says to another,
'What?  You too!  I thought I was the only one!' "

---C. S. Lewis

Friday, March 25, 2011

Happy Birthday Crown of Beauty

Photobucket

because it will be march 27th in philippines before it is here, on the other side of the world..i think that this post should be posted now in honour of our sweet and beloved friend and sister, crown of beauty...
first of all i am going to copy and paste a little of her blog profile to show everyone what she really is and what she stands for...

she is nor ashamed of her saviour!

"It's not really about me. I want this blog to be a tribute to God my King, my Creator, my Redeemer, my faithful Father. I am merely a channel, and a voice. But I am His workmanship, and in that truth I take great delight. I marvel at how uniquely He has fashioned me. As David says in Psalm 139:14 - "I will praise You for I am fearfully and wonderfully made!"







one of crown of beauty's favourite singers is chris tomlin and so i am putting this much loved hymn in here for her,,,a birthday present for our dear sister!




happy birthday...love from all of your sisters!!

Photobucket

PRAYING FOR KIERSTEN


In Epilepsy Monitoring Unit now. Big brother Caleb (age 8) loving on Miss Kiersten.



We are still at Cooks and Kiersten has had 2 seizures today. Hoping today will be the day that we get her medicines figured out!! Thanks you everyone for your prayers and uplifting words. We apologize for not being able to respond to everyone, but just know your prayers and concern for our baby mean the world to us.

Thursday, March 24, 2011

UPDATE ON BABY KIERSTEN

I just wanted to send you a brief update to let you know that Kiersten has had 18 seizures yesterday/last night and after a couple hours at home will now head to Cooks Children in Ft Worth for further evaluation. Please pray diligently for Kiersten and her entire family! Continue praying!!

Wednesday, March 23, 2011

Moving Forward..............

Today, our Bible is off to the next Sister. It has been my great joy and privilege to have had it with me and to write about the joys and blessings of walking with Jesus Christ.  The threads of my life have been woven by God into a tapestry of love, faith and joy.  Yes, there were times of pain and sorrow.  Such is common to man, none are immune.  However, the Lord has always brought the pain and sorrow to bear good fruit in my life; for that I am forever thankful.  Whatever good or lovely there may be in me, it is but a reflection of the Lord.

Just as the Bible moves forward, so my life had to move forward if I were to honor my Lord.


The Love of My Life

January 26, 2009.....the day Terry entered his eternal rest with Jesus Christ, our Lord.  Nothing has even been more painful or more glorious to me.  I could not phantom  how the same event could wrench my soul and yet give me such joy.  The peace that flooded the bedroom the minute Terry's sirit left with Jesus is something indescribable to anyone who has never witnessed it.  My sisters and I stood at Terry's beside weeping and praising the Lord because we knew his battle was won.

I went about my life and did my best to move forward.  I traveled to Iowa and spent a couple of weeks with my niece and her children.  It was a wonderful trip and brought me so much joy.  However, something lay deep within me that would not allow me rest.

I returned home very sick, eventually finding that I had pnuemonia.  It took about a month after returning home to really recover.  Spring had arrived and I wanted to be peaceful, to feel happy, and I did a pretty good job at faking it, but real happiness was not in me.  Days ran into weeks and weeks into months.  Then, I got the Traveling Scarf in the mail and it was like a shot of medicine for my soul!

My week with the Scarf was a time of renewing for me.  It gave me something to look forward to every day; a new adventure to be sought.  That week helped to bring me out of my shell and helped me to begin to deal with my grief.


Jaden, Katie (My Niece) and Alix Joy
Blank Park Zoo
Des Moines, IA
August 17, 2009
The BEST Medicine in the World!!!!

My niece and her family moved to a new city in Iowa and I again wanted to visit.  I had flown on my first trip and decided I would drive this time.  My family was not happy about me taking out on my own to drive the several hundred miles there and back, but I somehow knew I needed to do it.  So, I set out for Iowa in late summer.

The trip was wonderful.  I spent time with Katie and Brian and the kids and had an absolute ball!  The trip up was like a catharsis for my heart.  I listened to old 70's music and relieved my youth as the miles passed below my wheels.  Then, I would swap and listen to praise and worship music and refresh my soul.  The little lady in my GPS and I became the best of friends!  ;-)


Love in a Basket!
October 7, 2009

I returned home in early September and just couldn't feel right.  I slipped into a depression that seemed to be swallowing me.  On October 7, I got the most beautiful bouquet of fall flowers from the Sisterhood.  It brightened my day and gave me so much happiness.  However, the depression didn't budge.

On October 10, I collapsed in my MIL's home and awoke unable to remember who to contact or how.  I eventually remembered to dial 911.  After a series of events, my sisters finally found me.  I had had a mini breakdown.  They told the doctor it was probably because of all the stresses of the past few years and the subsequent death of my husband.  I knew the real cause.

From the time I told Terry about the abuse, I had never spoken of it with  anyone else.  No one living on this earth knew what had happened to me except me and Terry; my abuser and his wife had died many years prior.  I wasn't afraid but I didn't know how to deal emotionally with being alone in that knowledge again.

Grief counseling brought all that out and my therapist advised me to tell my family.  So, I did.  I told my sisters and my niece and nephews.  They all cried with me and were so angry at what had happened to me.  We made an agreement that Daddy must never know. 


Charlotte, Debra, Daddy and Me
Christmas 2009
Charlotte and Ricky's house

I was so unstable emotionally that my doctor didn't want me at home alone.  My sister, Charlotte, was so loving and kind and asked me to come and live with them for a while.  I ended up spending about 18-20 weeks in their home.  I was with them during the holidays and into the New Year.  It may have quite literally saved my life.

In March of 2010, I moved back to the home Terry and I had built together and where we had made our lives.  My first night home was the first real night of peace and rest I had had since Terry went home.  The last year has had it's ups and downs, but I am at home and my heart rests here.  Daddy is now with me and we do our best to take care of each other. 


New Year's Day, 2011
Our Christmas Celebration
My House
Terry would have been so excited that everyone was coming to our house for Christmas!

When I look back over the past several years, I am filled with awe and wonder at how God works in my life.  He has always been with me, even when I couldn't see or feel His presence.  He has been building a testimony in me.  I am nothing, it is all about Him.  My life would have been nothing but one big mess had God not been in the middle of it.  He alone is worthy of praise and He alone is able to build beauty out of ashes.


He has sent me to tell those who mourn
that the time of the Lord’s favor has come,
and with it, the day of God’s anger
against their enemies.
To all who mourn in Israel,
he will give a crown of beauty for ashes,
a joyous blessing instead of mourning,
festive praise instead of despair.
In their righteousness, they will be like great oaks
that the Lord has planted for his own glory.

Isaiah 61: 2-3   (NLT)


Since you have been raised to new life with Christ,
set your sights on the realities of heaven,
where Christ sits in the place of honor
at God’s right hand.
Think about the things of heaven,
not the things of earth.
For you died to this life,
and your real life is hidden with Christ in God.

Colossians 3: 1-3  (NLT)

PRAYER REQUEST FOR BABY KIERSTEN

Chelsey Ellis
Chelsey Ellis March 23, 2011 at 12:10am
Subject: Please Pray for K
Please say a prayer for Miss Kiersten if you get a chance please. With her getting bigger she is naturally weaning herself off her medicine, but apparently she still needs it. (I was kinda hoping she had just outgrown the seizures) A couple of weeks ago she had two seizures, very light ones, but it made the neurologist feel the need to check her blood levels and increase her medication.
Today Kiersten had a seizure at school, and I knew it was more intense from what they described a couple weeks ago, but reality hit Beau and I when we witnessed a seizure tonight. It took us back to when this all started. It broke our hearts watching her go through it, but I know she's a fighter and with prayer and the help of the medication being increased she will do just fine.
Thank you so much,
Chelsey (K's mama)

Monday, March 21, 2011

Letting Go..........

After the trials and tragedies of 2006, I have to tell you, I was more than ready to ring in the New Year of 2007 and pray for relief!  God was so gracious to us and gave us just what we prayed for.  The days were almost mundane. 

March 7, 2007
Terry's 53rd Birthday
There was always plenty to do, such is life when you are caring for those who are suffering.  However, the days were so peaceful.  I distinctly remember sitting on the front porch with Terry one evening in the spring and talking about how incredibly peaceful our life was in that season.  It was a welcome time of refreshing.
My MIL continued to heal slowly.  She adapted to her new normal and she and Terry began being more tolerant of each other.  I have to say, that was perhaps the greatest blessing of that entire year to me!  Just to abide in a peaceful house was glorious!

The days came and went and life was good.  Then, in late July, Terry was very sick again.  He woke up one morning and couldn't get out of bed.  He called and I helped him up.  He couldn't stand up alone; his body trembled and shook every time he tried to complete even the smallest task.  At the breakfast table, his hands and arms shook so badly that he couldn't feed himself.  I fed him, helped my MIL with her morning routine and cleaned the kitchen.

I went in to check on Terry and he had become almost non-responsive.  I called 911.  He was admitted to the hospital with encephalopathy, renal failure and ascites.  These are all conditions common to those with end stage liver disease.  After several days in the hospital, he was better and ready to go back home.  It was good to be back at his Mom's house and she was relieved to have us home.  A neighbor had been caring for her while we were away.

Terry continued to do well until late September.  Some problems sent us to the doctor's office for a visit.  Labs drawn during that visit showed that his liver was now almost completely non-functioning.  We were told he had perhaps six months to live.  Neither of us were ready to hear that.  We drove home in almost silence, neither knowing what to say to the other.

After many long talks, we decided that we must tell our family.  We sat down with his Mom and told her what was going on.  She refused to believe it and was in complete denial.  She would not talk about it.  We had no choice but to love her and pray that she could accept it and begin to let the Lord comfort here.

My niece and her family had decided to accept a re-location to Iowa for a job promotion for my NIL.  They had told us they would be home in late October and would be moving the first week of November.  We decided we would tell my family while we were together for their going away party.

My family didn't know quite what to say or do.  They listened and cried quietly as I told them.  Even the little ones didn't run in and out or act up.  When I said goodbye to them later in the day, even the kids gave me big hugs and told me they were gonna pray for Uncle Terry.


Terry
Christmas Day, 2007
Debra and Dwade's house
(formerly Momma and Daddy's house)

The holidays came and went.  It was bitteersweet because Katie and her family didn't get to come back home for Christmas.  Momma was gone and now we must accept that this could well be Terry's last Christmas with us as well.  We were solemn.  Terry, however, had a wonderful time.  He laughed and cut up and picked on everyone just as he always had.  He refused to be sad and forlorn.  He was such an inspiration to all of us.

The six month window for his expected death was March of 2008.  As March came and went, he and I would sit on the porch at night and talk about how perhaps the doctors were just wrong, perhaps he really wasn't dying at all.  Then, he would get really sick again and it would become all too evident that he was indeed dying.

On March 25, his Mom fell and broke her hip.  After surgery, she had to be admitted to a skilled nursing facility for rehab. She was very unhappy there, but I had no choice because I knew I couldn't bring her home.  She needed to try to rehap and get back on her feet if at all possible.  I knew she would be miserable any other way.


Mother's Day Weekend, 2008
This was Terry's favorite photo taken that day!
He was so much fun!

She was still unable to get out of the facility at Mother's Day, so I visited her there and had my family at our house on Mother's Day weekend.  It was a wonderful time.  Terry so much enjoyed having everyone in.  We laughed and reminisced about all our years together.  It would be the last family gathering that Terry was really able to participate in.

It took four months of rehab, but my MIL managed to get back on her feet and walk again with the assistance of a walker.  She didn't like the nursing home, but Terry was so sick by then that I didn't feel I could take care of both of them at home.  So, on September 1, she was moved to an Assisted Living Facility.


Deer in our front yard.
Terry took this picture while resting on the porch swing.

Fall came and was beautiful.  Terry was so sick that he very rarely felt like sitting on the porch any more.  On one evening, he asked if I thought I could help him get out there and fix up a place for him on the swing where could semi-recline.  I went about getting the swing ready and helped him out.  He sat/lay there for hours just watching the sun set, listening to the birds and watching the deer playing the front yard.  That was in late October.

He wasn't able to go anywhere for Thanksgiving, so everyone came to our house.  He loved seeing everyone and was so excited that they had come.  He talked to everyone about how much he was looking forward to Christmas.  We planned Christmas at Charlotte's house because her kids were going to be home. 


December 27, 2008
Our Family Christmas Gathering
You can see how alone I already look (and feel).

On the day of our Christmas gathering, Terry was too sick to go.  His heart was broken because he couldn't go.  I didn't want to go, but I did want to go.  My heart was torn.  I couldn't bear to be away from him, but I so wanted to see my niece and her family for the first time in over a year.  He absolutely ordered me to go!  I told him I just couldn't but he wouldn't have it any other way.

I went, but I didn't feel at home there.  My heart wasn't there, it was with Terry.  Since the summer of 1973, my heart had been with Terry and will forever be so.  On that night, little did I know that I would have less than one month left with him. 

There is a lot more about the dying days on my personal blog.  If you haven't read the story and are interested, please visit me at  http://auntdisexperimentallife.blogspot.com/ and specifically check out these dates....12/5/08, What I Feel; 12/15/08, Roller Coasters (Part 1); 12/25/08, A Quiet Christmas Blessing; 1/10/09, Roller Coasters (Part II) and 1/21/09 - 1/26/09, all posts. 


August 22, 2008
The last picture ever taken of Terry.
You can see how sick he had become, even then.
He would live another 5 months and 1 week.

The day Terry went home was the absolute hardest day of my life.  Nothing in my life has ever shaken my foundation as that did.  I tried so hard to prepare myself for his leaving.  Nothing can prepare you for the pain that moment brings.  He had been my whole life for over 35 years, I could not imagine how I was supposed to go on without him.  Yet, I knew the Lord had a plan for me. 


Debra, Me and Charlotte
The day I received the Traveling Scarf!
June, 2009

I would never have survived that time without the Lord and the people He placed in my life.  It is in 2009 that the Lord sent the Scarf Sisters into my life.  In my first summer without Terry, you ladies came into my life and my heart.  You helped me heal by praying for me, encouraging me and allowing me to join in the Sisterhood of the Traveling Scarf!  God is always ON TIME....ALWAYS!!!!  You held me up while I battled grief!

So Joshua did what Moses had commanded
and fought the army of Amalek.
Meanwhile, Moses, Aaron, and Hur
climbed to the top of a nearby hill.
As long as Moses held up the staff in his hand,
the Israelites had the advantage.
But whenever he dropped his hand,
the Amalekites gained the advantage.
Moses’ arms soon became so tired
he could no longer hold them up.
So Aaron and Hur found a stone for him to sit on.
Then they stood on each side of Moses,
holding up his hands.
So his hands held steady until sunset.
As a result, Joshua overwhelmed
the army of Amalek in battle.

Exodus 17: 10-13  (NLT)




The Year That Just Wouldn't End.......

The respite of 2005 was such a sweet blessing to us.  Time to relax and enjoy each other, time to savor the blessings we so often took for granted.  That came to a thundering crash in 2006.....the year that just wouldn't end.

This was actually taken in 2005.
As far as I am aware,
it is one of the last pictures taken
of Momma and Daddy together.

In late January 2006, Mommas condition had deteriorated to the point that an operation to create a fistula for use in dialysis was necessary if we wanted her to have dialysis.  We were told that step was coming quickly.  She had the surgery in early February.  It would require several weeks to develop into a usable site for the large bore dialysis needles.

In mid-February, seemingly out of the blue, Terry became very ill.  His temps were elevated, his blood pressure was like a yo-yo, as were his blood sugar measurements.  This went on for about a week when he was suddenly hallucinating and could not get his temp down.  I took him to the ER on February 21 thinking he had some sort of virus.  We talked about stopping for a slaw burger on the way home.  We arrived at the hospital and he walked into the ER triage area.

Upon triage, he was found to have a blood pressure of 42/28.  They rushed him onto a gurney and ran with him into the ER trauma area.  Doctors and nurses were immediately all over him starting IVs and doing this and that.  I stood back in shock, as if I were witnessing something from a TV drama.  He had 7 lines going in him within 5 minutes.  Two nurses were straddling the gurney and manually pushing the large bags of IV fluids through large bore needles into his neck.

Within about 15 minutes, they moved the gurney into a trauma room and I was summoned to speak to a doctor.  She spoke slowly and plainly, telling me Terry most likely would not survive the night.  If he did, he would be on a ventilator and would most likely never be able to come off of it.  She said they had no idea what was going on with him and wouldn't know anything until tests were done.  She told me to call any family in who would want to see him before he died.

I couldn't believe what I was hearing.  Just minutes before, he had been talking to me about wanting a slaw burger for supper and now he was non-responsive and they were telling me he most likely would die.  I could not reconcile one set of facts with the other.  She told me a critical care/pulmonary specialist would be around to talk with me as soon as possible.  I called my family and his and told them what was going on.


He loved covered bridges!

Ricky, my brother-in-love, arrived first.  He sat with me at Terry's bedside in the trauma room.  The specialist came in to talk to us.  He told us he had been in this field for over 35 years.  He had never seen anyone as medically 'dead' as Terry actually survive.  I asked if Terry was aware of how sick he was and what I should or should not say to him.  He reassured me that he could hear me and that I should say anything I wanted him to hear as if it were the last time I would have the opportunity to talk to him.

Ricky and I prayed at Terry's bedside.  We both wept and talked quietly with Terry.  He opened his eyes once and tried to talk, but couldn't. I reassured him that I knew what he was trying to say and that Ricky was with me.  I also told him other family were on the way.

Family came and went throughout the night.  His condition did not improve.  Over the next few days, he began to respond to the meds and was marginally improved.  After 5 days, he was moved from the C.C.U. into a telemetry room.  He was recovering well and was then diagnosed with a staph infection.  New meds were ordered and he began to respond about 2 days later.  He was discharged on March 4 and was doing relatively well.  He had been diagnosed with 3 different types of strep infection and a staph infection.  Had he not gotten medical attention at precisely the right time, the sepsis would have killed him.  God is ALWAYS on time!  ALWAYS!

Terry was home about 10 days when Momma became very ill and was admitted to the hospital.  Although her fistula was not ready for use, she had reached the stage to require dialysis.  A central line port was implanted into her right shoulder for access.  She was dialyzed 4 times and sent home with orders for dialysis 3 times weekly at the out-patient dialysis clinic.

On Good Friday, April 14, she became very sick very quickly.  She was transported by ambulance to the ER and was admitted.  The doctor told us this was most likely nearing the end.  She was dialyzed Saturday-Tuesday.  On Tuesday, while Momma was in dialysis, her doctor met with me in her room and told me it was time to call an end to intervention.  Momma was septic from the port and was not responding to medications or dialysis.


Daddy
Our First Mother's Day Without Momma
May 2006

My sisters brought Daddy to the hospital and we told him.  His heart was broken, but he knew it was now time to let her go.  Momma went home to be with Jesus about 2:45 a.m. on Thursday, April 20.  She entered eternity quietly and peacefully after having suffered for so long.  Our family was so lost without Momma, but we knew we now had to help Daddy through his grief and set about doing so.

The days passed and we grieved Mommas absence, but we also praised the Lord for taking her home while still having cognitive abilities enough to know us all.  She had been diagnosed with Alzheimer's in 1998. My maternal grandmother had also had Alzheimer's.  It had been Mommas worst fear that she would forget us before she died.  She prayed fervently that the Lord would allow her to come home before that happened.  As much as it hurt to give her up, we knew the Lord had answered her prayer and were thankful.

Terry continued to be weak and couldn't seem to recover as well as we thought he should.  In mid-July, he went for a follow-up visit and had routine labs.  A couple of days later, we were notified we were being referred to a gastroenterologist for a liver work up because the tests had shown possible liver disease.  We saw the GI doctor, who confirmed cirrhosis was suspected.  A new series of labs were ordered and an endoscopy was scheduled to check for varices or swollen blood vessels in the esophagus, which would be a sure indicator of cirrhosis and would mean a liver biopsy was warranted.

The endoscopy showed three varices which were swollen, but not yet ready for 'banding', a procedure to tie off the swollen vessels and cause them to die in order to prevent rupture and possible bleed out.  The lab results showed moderately elevated liver enzymes, low platelet count and elevated white blood cell count.  All of these were indicative of cirrhosis. 

It also revealed Terry had a genetic disorder called Alpha 1 Anti-tripsin disorder.  It is an inherited disorder which can only be passed to the children of two individuals who carry the gene.  It is of no danger to either parent, but could be passed down to some of their children.  Since Terry was an only child and we had no children, it was of no consequence to anyone except Terry.  Basically, it meant that his liver was being destroyed by his body since the day he was born. 


Summer 2006
Just after we learned of his liver disease.

Having been obese for most of his life and having developed Type II Diabetes only served to make matters worse.  He had also had three lacerations of his liver in the accident which had been resolved without surgery.  These factors had combined to destroy his liver at an early age.  A liver biopsy confirmed he had Stage 4/4 cirrhosis.  We didn't tell anyone for several months.  It was just too hard and we needed time to get alone with God and make peace with it on our own before sharing with others.

On August 12, Terry's Mom had accidentally fallen out her back door and had landed flat on her back on concrete.  She was able to get up and get inside on her own.  She called me and I went immediately to check on her.  She was in terrible pain and was beginning to have problems moving her legs.  I called an ambulance and she was taken to the ER.  She was diagnosed with six fractured vertebra, the last four thoracic vertebra and the first two lumbar vertebra.  She was placed in a rigid back brace and sent home.  She could do nothing for herself.

I called Terry and told him I was going to have to stay with her and we could talk the next day.  He called the next morning and I explained what was going on.  The doctor had said she might need total assistance with activities of daily living for a year or more.  I told Terry I thought we should move in with her so I could take care of her and him because her house was bigger.  He didn't want to do that; he wanted to admit her to a nursing home.  I begged him to just let me try it for a month or two and see if I could do it.


Ms. Gladys and Mr. Bo
My In-Loves
About 2000

I talked to my sisters and told them they would have to take care of Daddy because I couldn't manager Terry and his Mom full time plus helping with Daddy.  They assured me they could take care of Daddy and that I should go ahead and not worry about it.  So, within four months of Mommas death, Terry and I moved from our home into my MIL's home.

Taking care of my MIL was more exhausting than I had thought it would be, but I was committed to doing it and doing it well.  I lifted her out of bed each morning and into bed each night.  She could do nothing for herself.  She had been a very independent woman and didn't take well to so much dependence.  She and Terry argued constantly and I was caught in the middle.  It was exhausting just to try to be in a conversation with both at once.  Both wanted my full attention and there was only one of me.

Terry loved his Mom dearly, but did not have a good relationship with her.  He always felt manipulated by her from the time his Dad had died when he was nine years old.  She had remarried five years later without ever talking it over with him, which caused a lot of problems not only between the two of them, but between his step-dad and him as well.  It was a rough period.


Charlotte
Daddy's House

Charlotte had been having pains in her back since before Momma had died.  They eventually got bad enough that she had to go to the ER one night.  They diagnosed a kidney stone and scheduled her with a Urologist the next day.   The doctor wanted to do the lithotripsy procedure to burst the stone into small pieces so she could pass it more easily.  The procedure was scheduled for the next week.

The procedure went well and she was at home by late afternoon.  However, late in the night, she got sick and had to go back to the ER.  They admitted her and told Ricky she had an infection.  After a couple of days, she was feeling better.  I talked to Ricky on a Saturday night and was told she was feeling much better and would probably come home on Sunday.

Early on Sunday morning, Ricky called to say she had taken a turn for the worse quickly and had been moved to the C.C.U.  She was septic and was near death.  The doctor had advised him to call the family in.  We rushed to get to the hospital to find her very sick.  She could barely hold her head off the pillow and was vomiting regularly.  Her condition was poor and her prognosis was poor as well.  I couldn't believe we were there with my sister so close to death after all that had happened that year.

Over the next several days, she began to improve.  The sepsis finally cleared and she began to slowly regain some of her strength.  We were so thankful and couldn't stop praising the Lord for her healing!  She continued to improve and came home a few days later.  In October, she and her family took Daddy with them and went to the Smoky Mtns. for her to rest and recuperate.


Dec. 25, 2006
Daddy's House
Our First Christmas Without Momma
and
Our First Christmas After Terry's Cirrhosis Diagnosis

By December, I was feeling very sick again.  I thought it was just the stresses of the year making my stomach issues revolt.  I went in to see my doctor at Vandy and was told my stimulator battery had died and would have to be replaced.  Surgery was scheduled and the stimulator was replaced a week before Christmas.  The battery was supposed to have lasted at least 5 years.  However, my muscles had so little nerve stimulation that the impulses required to contract the muscles had to be stronger than normal.  This cut the battery life less than half.

By Christmas, we were all feeling better but so sad because this was our first Christmas without Momma.  I remember watching Daddy and thinking he was just moving through the motions.  I understand that now.




In that day the people will proclaim,
“This is our God!
We trusted in him, and he saved us!
This is the Lord, in whom we trusted.
Let us rejoice in the salvation he brings!”

Isaiah 25: 9  (NLT)


In fact, this is love for God:
to keep his commands.
And his commands are not burdensome,
for everyone born of God overcomes the world.
This is the victory that has overcome the world,
even our faith.
Who is it that overcomes the world?
Only the one who believes
that Jesus is the Son of God.

I John 5: 3-5  (NIV, 2011)




Sunday, March 20, 2011

Scarf Sister moving against the stream

Our Scarf Sister Connie N., Laughter, Love and the Zen of Midlife has made me feel both humble and proud at the same time. While others are fleeing from japan like rats from a sinking ship, sister Connie was moving from Saipan to Japan yesterday. I often feel reluctant when I read words like hero, patriot and even trooper. Connie is this and more. I've copied her blog from last Sunday to share with you. Please, Keep Connie and her family in your prayers.

From Felisol

Sunday, March 13, 2011

My last Sunday in Saipan

Firstly- huge hugs to all who are praying for the people of Japan- the land that I have come to love and embrace as my own homeland. My heart is so deeply broken...as we all watch the unfolding of the moments and hours as they pass....rescues...search and recovery....I can't even fathom where they will start to put their lives back together.

When I look at that tangled mess that was home to thousands of people I feel helpless....my instinct is to figure out a way to go up there and help as soon as I land in Japan. Do not be surprised if I post that I have joined some organization as a volunteer....the years I spent in the Red Cross are still in my blood.

I have been given an extraordinary amount of compassion and it is surging...ready to spill over...I need to find some way to put it into action. I am sure there will be something I can do - even from our hometown in Itoda.


I'm here at the laundromat with my daughter-helping her and spending time with her.

We moved our boxes today and what little we are taking to Japan. All we have left at our friends home are our clothes-we'll move those on Saturday morning. I'm coming up on my last week here in Saipan....what a strange feeling.

Thirty years winding down to an end. Where did the time go??

What is in store for us in Japan?

Soon....we shall see....

OK...there is a huge mountain of clothing that needs attention. Thank God my online friends are safe....we will continue to pray for the families of those that were lost and are still missing.....the residents on one entire town possibly washed away....

ok....laundry to fold....

till later on this week.....







Happy Birthday to a Special Young Man


this handsome young gentleman is fifteen years old and it his birthday!!!...
i have just spent the last hour or so looking into one of his mom's and one of my own favourite links that she has on her "whatever happened to" http://scentedgeranium.blogspot.com/ ...nathan's posts. http://scentedgeranium.blogspot.com/search/label/Nathan
there is so much gold here that i had to force myself to stop reading because i don't want to miss wishing dear nathan a very happy birthday.
i have copied and pasted a few choice "parts" of posts and a few of my favourite comments..i just wish i had more time but THIS post HAS to be written....so if you want more, you will just have to go to nathan's posts and read them yourself......oh sooooo good!



mrs.mac post." instilling a love for cooking and healthy eating." .Nathan is at it again .. learning how to cook! He so loves to crack eggs, stir them with milk and make him some good eats (French toast) from the kitchen. If you have a picky eater .. try including them in the cooking .. or growing/gardening process to make healthy food choices more personal. We are looking forward to the 'dirty' work in the garden now that winter is almost a memory :)

Felisol said...

Dear Mrs. Mac,
what delight to read a post about joyful, normal things.
Young Nathan building new stones of progress on his life's building.
A particular beautiful picture, captured by his Mom?
Greetings from Felisol


Mrs. Mac said...

How do you 'like' that grubby little face on Nathan .. he's a hard one to get his face cleaned at times


Pat said...


His grubby little face is ALWAYS cute








Felisol said...

I thank God for Nathan and for his friendship with Jacob.
(And for the team working to develop this further).

The pictures of the two lads building a gingerbread house are priceless.

I'm just so happy for all of you, and for knowing such great people.

Constance said...
I love this! God will bless Jacob tremendously through this relationship with his Uncle. It's obviously already blessing Nathan! We have no idea of how God will use their relationship in the future but I see wonderful things ahead!
Love, Connie

sanwalkergirl said...

That must do your heart good to see Nathan forming a friendship with his nephew Jacob.

Thanks for sharing the pictures!

Blessings in Christ...Susan




Nathan .. that's about all I'm writing about on this blog of late. But .. today was his second Sunday attending church with me .. in the adult church .. he has sat quietly by my side during the entire service .. soaking in some of God's word .. listening to praise and worship music. This is something I have prayed for for several years .. Words are not adequate for what is taking place.

Maggie Ann said...

How precious! That looks like just the kind of Christmas gift two men would appreciate! What a great picture Mrs.Mac...



This past week found Mr. Mac and myself attending a meeting at Nathan's school with his teacher. At times I have no idea what he's capable of doing .. because when he gets home from school, it's time for him to unwind .. have some quiet time .. dance .. watch a movie. He rarely gives me more than a nod when I ask how his day at school went. OK is his word of choice. OK can mean he had a good day or a bad day. OK and NO are sometimes interchangeable with Nathan. Short answers do not always answer questions. At one point during the meeting we stepped into the classroom where Nathan was studying. There he sat with a few other children at a computer desk ... wearing a headset ... and surfing the web. Now, I had no idea he could 'surf the web' .. but there he sat .. surfing the web. He is mainstreamed in P.E. and is excelling ... and now sits in a circle for reading .. taking turns .. practicing moving his finger under the line of words the other children are reading. Last month we ate out at a restaurant that had white butcher paper on the table as a covering .. crayons were provided for amusement .. so I started writing out simple words ... family names .. and Nathan was reading them. I am witnessing a miracle in my child's progress. He is developing good coping skills and losing some of the 'fright/flight' antics that once dominated his behavior. Being in crowds is less frightening .. he's growing up ALL AT ONCE right before my eyes ... Praise The Lord!
Kathryn said...

Wow. This is going along so well, like a snowball rolling downhill & picking up speed. :) How wonderful for you and for Nathan to be having this experience. So good for you both. Bet this is a big motivator in self esteem for him, too

Sandy said...
It's so wonderful to hear of
Nathan's great progress! God
is so good!
Hugs,

Constance said...
Sometimes I am SO amazed at how self absorbed I have become. I can only seem to focus on MY stuff going on and I forget that other people have their own challenges. So glad that you are seeing such amazing progress in Nathan! It must warm your heart to see him moving forward and accomplishing things that the rest of us take for granted! Have a wonderful Christmas my friend!
Connie

Margie said...

YAY! to both of you!!! Him for growing up, you for using your smarts!




Most days find our son, Nathan, somewhat apprehensive and shy. That is ... until ... he turns on some music and starts dancing (spinning) .. non stop until he either wears himself out ... or I purposely 'unplug' him.

Nathan often sings along with the music ... helping him to practice his speech. My once un-intelligibly voiced son is starting to string three and four word sentences together. Music ... soothes the savage beast (so I've heard) ... and brings out the best in Nathan. Normally, loud noise sets him off in a tizzy ... but not so with music .. to him it's a white noise pleasure. BTW ... I have to frequently change the furniture placement so as not to wear a hole in the carpet.

FlowerLady said...

Music speaks to our hearts and souls. It can make us dance, laugh, sing, cry. It can soothe us, and sometimes bother the heck out of us, but it speaks to us individually. Glad that it speaks to Nathan too, and helps him with his speech.


Sandy said...


That darling boy is a hoot!
I remember all those songs.
I'm sure all that dancing
is good for him and I am
glad he has an outlet and
a way to have some fun.
It's just wonderful that
his speech is developing.
Now, if it would only
happen for dear Shaun.
Hugs,
Sandy

Kathryn said...

It makes me smile to think of him spinning & dancing up a storm. :)

Glad he has something he enjoys so much.


Amrita said...

There 's no one like Nate- he is full of life!




mrs.mac post,"off to the fair".. "We talked Nathan in to going to the fair yesterday :) Since he's been receiving 'intense' development therapy, it's been a little easier getting out and about with him. The highlight was having him walk through the horse barn. (OK ... I bribed him with a few pennies ... he's saving up 70 so he can 'purchase' an outing to the bowling alley.)
TherExtras said...

No, and I have countryfairenvy! Nathan looks so cute and happy! I think a walk through the horse barn is worth at least few pennies. Good for both of you!

Terry said...

and just to think mrs.mac...i don't know about the states but canada has been trying to get rid of the penny for years.
and just to think how the penny is motivating your gift.
i am so pleased with him!
he is not only a gift from god but he is a TREASURE to YOU and the family!..love terry







post from mrs . mac..."911, what is your emergency?" Hello ... This is Mrs. Mac. I have a little son with Down syndrome and he's missing from his bed. His shoes are gone and his older sister heard the front door shut about five minutes ago. We've been looking for him inside and outside ... calling his name. It's pitch black and we live in the woods. pause ... blood curdling scream can be heard outside (sounds as if coming from a girl) ... Sir ... we've found him, thanks .. and sorry for the trouble. Click."
Mr. Mac soon calls out that he's found Nathan. This happened last night around 10PM. Ann was already in bed and the Mr. and I were watching a movie downstairs in the family room. The scream?? It was a neighbor girl ... seems Nathan just walked into her home unannounced. Later I asked why he left and he said he wanted to watch a movie with his friends. You can bet we will be hiding his shoes at night. You can bet that our home's alarm. door chimes are once again turned on. And you are wondering why I have so much gray hair?;)

TherExtras said...

Thanking God Nathan was found quickly and safe. His Guardian Angel is very resourceful in guiding him to be found!

So, he won't go outside barefoot? Are you sure?

Barbara

Crown of Beauty said...

Oh dear Cathy,
This is a good post, another one so full of promise for Nathan, and for you.

Hopefully he will remember all the changes that he is going through...and will feel good about it.

I am really praying for Nathan that he will overcome some of the fears that keep him from trying out new things.

May this year bring him plenty of positive experiences.

Lovy


Constance said...


What a sweet face! He may march to a different drummer but you recognize his tune!
Hugs,
Connie


FlowerLady said...


Nathan is a special gift from God to your whole family.


Jim said...

I am sure that God placed Nathan with you guys because He wanted and knew you all would make a wonderful home for him. Your childrens' prayers added encouraging support to help His desires for Nathan along.

God has blessed you and will continue to bless a whole lot more.
I will add my little prayer, "God bless you, M&M, mother of Nathan."


Jada's Gigi said...

God hand picks hearts like yours to raise these precious little ones. As Sara says..."Amen


Margie said...


I love nathan! All the way from Michigan... and I've never met him!!




Amrita said...
Nate has the most infectious smile in the world.He can light up a room with it

Trish said...
He smiles with his whole being...sweet man

HAPPY BIRTHDAY SWEET MAN!.....love from all of your aunties of the scarf sisters and your mommy mac!

Saturday, March 19, 2011

Respite........

Terry and I looked forward to the year 2005 with great expectation.  I was feeling so much better now that the stimulator was well adjusted and offering optimal support for my digestive system.  I was nauseated often, but not so badly that I couldn't participate in life.  I continued to throw up a few times weekly, but that is a grave improvement over several times daily.


Daddy, Momma and Terry
Mother's Day 2005
Momma and Daddy's house

My sisters and I were becoming much more involved in assisting Daddy with the caregiver responsibilities for Momma.  She had been diagnosed with Alzheimer's in 1998.  We had been told she now was suffering from renal failure.  Due to the fact that she had Alzheimer's, she would not be considered an appropriate candidate for a kidney transplant.  Our options were limited to dialysis if desired or just to allow her to succumb to the disease.

We spent long hours as a family praying together, talking about the decision and trying to do as we thought Momma wanted us to do.  Sometimes she didn't want dialysis at all and at others, she wanted to try it for a while to see if she could feel better.  Daddy was in a place where he couldn't even consider letting her go.  Since she had had to retire due to the Alzheimer's, he had spent every waking hour taking care of her and attending to her needs.  He was sick himself and getting tired, but he was not ready to let her go.

As it turned out, Momma went through a period of a about six months when she was extremely stable and able to continue to drive and be relatively active.  Daddy was so relieved to see Momma feeling better that his own health actually improved as well.  I was doing well, which also made Terry's health issues improve. 


Daddy, Me and Momma
Great Smoky Mountains National Park
June 2005

In June, the four of us started to plan a trip to the Smoky Mountains in East TN.  My middle sister decided it would be a good time to take her grandchildren on a little trip as well.  So, Daddy, Momma, Terry and I joined Charlotte and Ricky and their two youngest boys, along with their two grandchildren, and spent a week in the Smoky Mountains.  We rented a cabin large enough for all of us to stay together.  That way,we could share the responsibilities of taking care of Momma and Daddy and we could all enjoy the grands.

The vacation was wonderful!  We laughed together and enjoyed each other's company so much.  The grands kept us busy and entertained.  They were Momma and Daddy's first great-grands, so they quite naturally thought they hung the moon and caused it to shine!  The week ended much to soon.

As the summer progressed into fall, Momma was getting sicker.  She kept saying "I sure wish I could see those mountains one more time before I die".  We assured her we would take her back next year.  Finally one day she just said quite bluntly "If y'all are gonna take me to see the mountains again, then you'd better do it now".  We were shocked at her sense of urgency.  We knew she was getting sicker, but had no idea she had this sense of urgency.


Standing (L-R)---Daddy, Terry, Jacob, Ricky and Caleb
Sitting (L-R)--- Momma, Charlotte and Debra
Cades Cove
Great Smoky Mtns. Nat. Park
October 2005
(Please note Terry's fingers protruding above Jake's head!)

My sisters and I spoke to her doctor, who advised us to take her wherever she wanted to go and she would send orders with us to use should she need to be hospitalized.  We went home and talked it over with Daddy and our husbands.  They each said we should go.  We planned the trip for October so she could see the beautiful autumn colors.  Both of my sisters went as well as me and Terry, along with Daddy, Charlotte's husband and her two youngest boys.   

Again, we rented a cabin large enough for all to stay together.   There wasn't a lot of going out, mostly just sitting by the fire and talking, playing games and laughing together.  Debra, Charlotte and I cooked the meals and watched with wounded hearts as Momma and Daddy sat and talked with their two youngest grandsons and two of their sons-in-love.  We spent most of our time in the kitchen wiping tears from our faces and joked that nothing needed salt cause our tears were seasoning enough.


Me, Charlotte, Debra, Momma and Daddy
Crystal Waters Cabin
Great Smoky Mtns. Nat. Park
October 2005
Our Last Family Portrait

The holidays arrived and Momma was continuing to decline.  Christmas was bittersweet because we were overjoyed to have my nieces husband back safely from a year's tour of duty in Iraq, but we were heart broken for our oldest nephew whose wife had left unexpectedly and filed for divorce.  We were a happy-sad family that year, but still blessed to be together.


Then Jesus said, “Come to me,
all of you who are weary and carry heavy burdens,
and I will give you rest.
Take my yoke upon you.
Let me teach you,
because I am humble and gentle at heart,
and you will find rest for your souls.

Matthew 11:28-29  (NLT)
 
The Lord is my shepherd;
I have all that I need.
He lets me rest in green meadows;
he leads me beside peaceful streams.
He renews my strength.
He guides me along right paths,
bringing honor to his name.

Psalm 23:1-3  (NLT)